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Finding Data: Data on Mental health


  • Americans' Changing Lives: Waves I-V (1986, 1989, 1994, 2002, and 2011)
    Focusing especially on differences between black and white Americans in middle & late life, these data constitute the first 5 waves in a national longitudinal panel survey covering a wide range of sociological, psychological, mental, and physical health items. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning. Background information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

  • Canadian Community Health Survey (2000-2001, 2003, 2005, 2007-2014)
    Provides data for health regions and combinations of health regions across Canada. Includes information on a wide range of topics, including: physical activity, height and weight, smoking, exposure to second hand smoke, alcohol consumption, general health, chronic health conditions, injuries, and use of health care services. It also provides information on the socio-demographic, income and labour force characteristics of the population. For 2002 and 2012, there is an additional file for the Canadian Community Health Survey - Mental Health.

    Sample Size: Sample of respondents aged 12 or older residing in households in all provinces and territories.

  • Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States]
    Initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. Primary objective was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues.

  • Galveston Bay Recovery Study, 2008-2010
    Designed to study trajectories of wellness after Hurricane Ike hit the Galveston Bay area on September 13, 2008. The sample included adults who were living in Galveston County or Chambers County, Texas at the time of the hurricane, not just those who remained in the area after the hurricane, who may have been less affected by the storm. Three interviews were conducted approximately 2-5, 5-9, and 14-18 months after the hurricane, respectively. Information was obtained on experiences during Hurricane Ike, lifetime traumatic events, and mental health and functioning before and after the hurricane, as well as between survey waves (including assessment of posttraumatic stress disorder, depression, generalized anxiety disorder, panic disorder, and suicidality). Demographic variables include race/ethnicity, age, education, marital status, number of children/offspring, income, and employment status.

  • Hispanic Established Populations for the Epidemiologic Studies of the Elderly
    The Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study sought to apply a standard definition of frailty in a well-defined sample of Mexican American older adults and to examine the impact of frailty on disability, health related quality of life, institutionalization, and mortality in this population over time. This project is a continuation of a prior study (the Hispanic EPESE) examining the enabling-disabling process in this same population of aging Mexican Americans; data were collected from 1,031 older adults who were participating in the Hispanic EPESE. Only subjects who were physically capable of safely completing the muscle strength measures were included. Baseline interviews were collected for this subsample in 2006/2007 during Wave 6 of the Hispanic EPESE study. This collection includes data about respondents' health status, activities of daily living and their ability to perform tasks. Two-year follow-up data were collected in 2008/2009 from 731 participants in Wave 1. Demographic and background information include age, relationship status, gender, marital status and household composition. Follow-up waves of the baseline Hispanic EPESE provided cross-sectional and longitudinal examinations of the predictors of mortality changes in health outcomes, institutionalization and other changes in living arrangements, as well as changes in life situations and quality of life issues. Beginning with Wave 5, an additional sample of Mexican Americans aged 75 and over was included. The individuals included in this sample had higher average-levels of education than those of the surviving cohort.

  • Hurricane Katrina Community Advisory Group Study
    Aims to inform policy-makers of the impact of Hurricane Katrina on survivors' physical and mental health and barriers to treatment, as well as assist in future natural disaster planning efforts. This will be achieved by monitoring, over time, a group of people who represent those affected by Katrina. The Hurricane Katrina Community Advisory Group consists of a broad cross-section of people affected by Katrina, including separate samples of people who resided in the New Orleans metropolitan area at the time of the hurricane and those who resided in the counties or parishes of Alabama, Louisiana, and Mississippi that were in the path of the hurricane. Follow-up interviews conducted with the Advisory Group members to monitor the pace of recovery, as well as reports prepared for policy-makers, press releases, and digitally recorded oral histories are being posted on the Hurricane Katrina Community Advisory Group Web site as they become available. Demographic variables include gender, age, race, ethnicity, pre-hurricane residence (place), pre-hurricane type of housing (detached home, mobile home, apartment, etc.), pre-hurricane employment, family income, marital status, education, home ownership (owned with mortgage, owned without mortgage, rented, etc.), where the respondent lived at time of interview, religious preference, and religiosity.

  • ICPSR Health and Medical Care Archive (HMCA)
    Preserves and disseminates health care data collected by researchers. Subjects covered include Health Care Providers, Cost/Access to Health Care, Substance Abuse and Health, Chronic Health Conditions, and Other.

  • Institutionalization Effect: The Impact of Mental Hospitalization and Imprisonment on Homicide in the United States, 1934 - 2001
    Explored the effect of imprisonment on violent crime rates prior to 1991. Previous research focused exclusively on rates of imprisonment, rather than using a measure that combines institutionalization in both prisons and mental hospitals. Using state-level panel-data regressions over the 68-year period from 1934 to 2001 and controlling for economic conditions, youth population rates, criminal justice enforcement, and demographic factors, this study found a large, robust, and statistically significant relationship between aggregated institutionalization (in mental hospitals and prisons) and homicide rates. This finding provided strong evidence of what should now be called an institutionalization effect -- rather than an imprisonment or incapacitation effect. Demographic information collected include national unemployment rates and institutional race and age composition.

  • Lone Wolf Terrorism in America: Using Knowledge of Radicalization Pathways to Forge Prevention Strategies, 1940-2013

  • Long Beach Longitudinal Study
    Created in 1978 to obtain normative data for the Schaie-Thurston Adult Mental Abilities Test (STAMAT). From 1994 to 2003 it was extended under the guiding principle that cognitive aging is a largely contextual phenomenon. Individual differences in abilities and change in those abilities over adulthood are associated not only with cognitive mechanisms, but with sociodemographic phenomena such as birth cohort, or gender, and within-individual characteristics, including health, affect, self-efficacy, personality, and other variables that impact health. This principle is reflected in the testing measures added to the original panel. Besides the original ability measures used by Schaie, the Life Complexity Inventory, has been included in all testing.

  • Longitudinal Study of Generations, 1971, 1985, 1988, 1991, 1994, 1997, 2000, 2005 [California]
    Began as a survey of intergenerational relations among 300 three-generation California families with grandparents (then in their sixties), middle-aged parents (then in their early forties), and grandchildren (then aged 15 to 26). The study broadened in 1991 and now includes a 4th generation, the great-grandchildren of these same families. The LSOG, with a fully elaborated generation-sequential design, allows comparisons of sets of aging parents and children at the same stage of life but during different historical periods. These comparisons make possible the investigation of the effects of social change on inter-generational solidarity or conflict across 35 years and four generations, as well as the effects of social change on the ability of families to buffer stressful life transitions (e.g., aging, divorce and remarriage, higher female labor force participation, changes in work and the economy, and possible weakening of family norms of obligation), and the effects of social change on the transmission of values, resources, and behaviors across generations. The LSOG contains information on family structure, household composition, affectual solidarity and conflict, values, attitudes, behaviors, role importance, marital relationships, health and fitness, mental health and well-being, caregiving, leisure activities, and life events and concerns. Demographic variables include age, sex, income, employment status, marital status, socioeconomic history, education, religion, ethnicity, and military service.

  • Mental Health Surveys (United Kingdom Data Archive) (2004+)
    Various mental health surveys for the United Kingdom. Titles include "Mental Health Surveys", "Mental Health Trusts: Community Mental Health Service User Survey", and "Mental Health Acute Inpatient Services User Survey". To obtain a free account please register with the UKDA.

  • Mexican Origin People in the United States: the 1979 Chicano Survey
    Household survey of persons of Mexican descent living in California, Arizona, New Mexico, Colorado, Texas, and Chicago, Illinois. The purpose was to compile a statistically representative and comprehensive body of empirical information about the social, economic, and psychological status of Chicanos. Major topics covered were mental and physical health and use of health services, family background and composition, customary practices and values, language use and attitudes, employment history, social identity, group consciousness, and political opinions and participation.

    Sample Size: Of over 11,000 people screened, 1,400 met the Mexican ancestry criterion. Of this total, 991 interviews were collected.

  • Murray Research Archive - Health
    Application may need to be made directly to the Murray Research Archive for permission to use the data.

  • National Comorbidity Survey Replication (NCS-R), 2001-2003
    Probability sample of the United States carried out a decade after the original 1990-1992 National Comorbidity Survey: Baseline (NCS-1) was conducted. Repeats many of the questions from the original and also expands the questioning to include assessments based on the diagnostic criteria of the American Psychiatric Association as reported in the Diagnostic and Statistical Manual - IV (DSM-IV), 1994. Investigates time trends and their correlates over the decade of the 1990s and expands the assessment in NCS-1 in order to address a number of important substantive and methodological issues that were raised by the NCS-1. Also see the National Comorbidity Survey: Reinterview (NCS-2), 2001-2002 and the National Comorbidity Survey: Adolescent Supplement (NCS-A), 2001-2004.

  • National Epidemiologic Survey on Alcohol and Related Conditions (NESARC) (2001-2002, 2004-2005)
    Primary source for information and data on the U.S. population for: alcohol and drug use; alcohol and drug abuse and dependence; and associated psychiatric and other medical comorbidities. Data is restricted. Contact Aaron White, Ph.D.; Division of Epidemiology and Prevention Research; National Institute on Alcohol Abuse and Alcoholism; (301) 451-5943;

    Sample Size: Representative sample of the United States population and 43,093 Americans participated in the first Wave of the survey. During Wave 2, reinterviewed 34,653 of those respondents interviewed in Wave 1.

  • National Latino and Asian American Study (NLAAS), 2002-2003
    Nationally representative community household survey that estimates the prevalence of mental disorders and rates of mental health service utilization by Latinos and Asian Americans in the United States.

  • National Mental Health Services Survey (N-MHSS), 2010
    Designed to collect information from all specialty mental health facilities in the United States, both public and private. Data are collected on topics including: facility type, operation, and primary treatment focus; facility treatment characteristics (e.g., settings of care; mental health treatment approaches, supportive services/practices, and special programs offered; crisis intervention team availability; and seclusion and restraint practices); facility operating characteristics (e.g., age groups accepted; services provided in non-English languages; and smoking policy); facility management characteristics (e.g., computerized functionality; licensure, certification, and accreditation; standard operating procedures; and sources of payment and funding); and client demographic characteristics.

  • National Survey of American Life (NSAL), 2001-2003
    Designed to explore racial and ethnic differences in mental disorders, psychological distress, and informal and formal service use from within the context of a variety of presumed risk and protective factors in the African-American and Afro-Caribbean populations of the United States as compared with White respondents living in the same communities.

  • National Survey on Drug Use and Health (NSDUH) Series (1979+)
    Formerly titled National Household Survey on Drug Abuse. Strives to provide accurate data on the level and patterns of licit and illicit drug use, track trends in the use of alcohol and various types of drugs, assess the consequences of drug use and abuse, and identify groups with a high risk for drug abuse to assess and monitor the nature of drug and alcohol use and the consequences of abuse. Primarily measures drug and alcohol use incidence and prevalence among the general civilian population aged 12 and older in the United States. Questions include age at first use, as well as lifetime, annual, and past-month usage for the following drugs: alcohol, marijuana, cocaine (including crack), hallucinogens, heroin, inhalants, tobacco, pain relievers, tranquilizers, stimulants, and sedatives. Covers substance abuse treatment history and perceived need for treatment, and includes questions from the Diagnostic and Statistical Manual (DSM) of Mental Disorders that allow diagnostic criteria to be applied. Respondents were also asked about personal and family income sources and amounts, health care access and coverage, illegal activities and arrest record, problems resulting from the use of drugs, perceptions of risks, and needle-sharing. Demographic data include gender, race, age, ethnicity, educational level, job status, income level, veteran status, household composition, and population density.

  • National Vietnam Veterans' Readjustment Study (NVVRS)
    Contains data from an assessment of the etiology, evolution, and extent of readjustment problems experienced by veterans of the Vietnam War. Variables include age, service period, duty status, casualties suffered, education, health conditions and disability status, hospitalization, use of Veterans Administration medical facilities and programs, medical history, insurance coverage, employment and training, income and investments, and assets and debts. Obtained from the National Archives.

  • National Youth Survey (NYS) (1976-1987)
    Parents and youth were interviewed about events and behavior of the preceding year to gain a better understanding of both conventional and deviant types of behavior by youths. Data were collected on demographic and socioeconomic status of respondents, disruptive events in the home, neighborhood problems, parental aspirations for youth, labeling, integration of family and peer contexts, attitudes toward deviance in adults and juveniles, parental discipline, community involvement, drug and alcohol use, victimization, pregnancy, depression, use of outpatient services, spouse violence by respondent and partner, and sexual activity. Demographic variables include sex, ethnicity, birth date, age, marital status, and employment of the youths, and information on the marital status and employment of the parents.

  • Panel Study of Income Dynamics (PSID) Series. 1968+
    Designed to fill the need for a better understanding of the determinants of family income and its changes. Longitudinal survey of US individuals and the families in which they reside. Can be used for cross-sectional, longitudinal, and intergenerational analysis and for studying both individuals and families. For comparisons of Current Population Survey, Survey of Income and Program Participation, and PSID, see the comparison chart. For comparisons of National Longitudinal Surveys, Survey of Income and Program Participation, and PSID, see the comparison chart. Includes section on education, food, health, housing, psychological state, and religion. Geography is down to the state level. Also see Poverty Threshold data, 1968-2005.
    Includes various supplemental surveys including:
    • Disability and Use of Time (DUST): collected information from older adults in PSID families about disability, time use, and well-being during telephone interviews conducted shortly after the 2009 and 2013 Main Interviews.
    • Child Development Supplement (CDS): In 1997 information on PSID children ages 0-12 was obtained through extensive interviews with the child, their primary caregiver, secondary caregiver, absent parent, teacher, and school administrator. Information was collected again in 2002/2003 and 2007/2008 for children in this cohort who remained under 18. Information includes a broad array of developmental outcomes including physical health, emotional well-being, intellectual and academic achievement, cognitive ability, social relationships with family and peers, time diaries, and much more. The CDS 2014 covers all sample children in PSID households born or adopted into the PSID since 1997. The study design and questionnaire content are consistent with earlier waves of CDS to permit cross - cohort analysis of children's development.
    • Housing, Mortgage Stress, and Wealth Data (2009, 2011, 2013, 2015) as well as Wealth files for 1984, 1989, 1994, 1999, 2001, 2003, 2005 and 2007.
    • Transition into Adulthood: When children in the CDS cohort are older than 18 and have left high school, information is obtained about their circumstances. This study has been implemented in 2005, and biennially thereafter. Information includes measures of time use, psychological functioning, marriage, family, responsibilities, employment and income, education and career goals, health, social environment, religiosity, and outlook on life.
    • Childhood Retrospective Circumstances Study (PSID - CRCS). First study conducted by the PSID using the internet as the primary mode of data collection. Goal was to design and collect a mixed mode (web or paper) module from household heads and, if married/cohabitating, spouses/partners, about their childhood experiences. The data may be used to study early life influences on adult health and economic outcomes. Has questions on parental relationships, health, socioeconomic status, neighborhood quality, friendships, school experiences, exposure to the criminal justice system, parent/guardian mental health, and young adut mentoring. The initial PSID-CRCS sample consisted of 13,117 individuals aged 19 and older (aged 19 by January 1, 2013) who were household heads and spouses/partners in PSID families that participated in the 2013 wave of PSID. Individuals for which other family unit members or proxies served as respondents in the 2013 core PSID interview and those who completed their core interview in Spanish were not eligible (N=593). During editing eligibility status was reviewed and confirmed for 12,985 cases. Many portions of CRCS are restricted.

  • Patient Surveys (UKDA) (2003+)
    Focused on people's experiences of primary care services in the United Kingdom, such as general practitioner (GP) practices and dentistry. Titles include "Primary Care Patient Surveys" and "Primary Care Trusts: Patient Survey". Also includes various mental health surveys. To obtain a free account please register with the UKDA.

  • Project STRIDE: Stress, Identity, and Mental Health
    Three-year research project that examines the effect of stress and minority identity related to sexual orientation, race/ethnicity and gender on mental health. Describes social stressors that affect minority populations, explores the coping and social support resources that they utilize as they confront these social stressors, and assesses the associations of stress and coping with mental health outcomes including mental disorders and wellbeing. Also explores the impact of various identity characteristics -- such as whether an identity is viewed positively or negatively, or whether it is prominent or not -- on the relationship of stress and mental health outcomes. The study, using extensive quantitative and some qualitative measures, is a longitudinal survey of 525 men and women between the ages 18 and 59 who are residents of New York City. Socio-demographic information collected about respondents included age, education (i.e., highest grade completed ranging from some high school to doctoral degree), race, and Hispanic ethnicity, adopting the measures developed and used by the United States Census Bureau in the United States population survey of 2000. In addition to these items, racial/ethnic identity was also assessed with the question "What is the country of origin related to your or your family's ethnic or national background, if any?" Respondents were allowed to select up to two nations from a comprehensive listing. For the purposes of the study, the instrument also assessed whether or not participants were natives of New York City or migrated as adults. Additional demographic variables include employment status, religion, relationship status, and sexual orientation.

  • Psychiatric Morbidity Surveys
    Various psychiatric surveys for the United Kingdom. To obtain a free account please register with the UKDA.

  • SAMHDA: Substance Abuse and Mental Health Data Archive at ICPSR
    Provides access to substance abuse and mental health research data.

  • Seattle Longitudinal Study (Midlife Study)
    Studies various aspects of psychological development during the adult years. Originally, in 1956, five hundred GHC members were randomly selected. They ranged in age from their early 20s to late 60s. The study has continued in seven-year intervals since 1956: 1963, 1970, 1977, 1984, 1991, 1998, and 2005. At each interval, all persons who had previously participated in the study were asked to participate again. In addition at each seven-year interval, a new group of people randomly selected from the Group Health membership have been asked to participate. Approximately 6000 people have now participated at some time in this study. Of the original participants, 26 people remain who have now been in the study for 50 years.

  • Sociometrics
    Consists of original research data and instruments on adolescent pregnancy, aging, alternative medicine, demograhy, disability, HIV/AIDS, mental health, poverty, social context, and substance abuse.

  • Speak To Your Health! Community Survey Data [Genesee County, Michigan]
    Biennial survey that examines a wide range of issues related to individual and community health in Genesee County, Michigan. Survey topics include physical and mental health, neighborhood safety, physical activity, nutrition, health care access, cancer, diabetes, sexual health, and smoking. The survey was conducted in 2003, 2005, 2007, 2009, and 2011.

  • Stress and Families Project, 1981
    Undertaken to investigate the relationship between life situation and mental health among low-income mothers, the group at greatest risk for depression. This longitudinal research project was interdisciplinary in approach and involved interview and observation data on mothers, children, and fathers.

  • Survey of Midlife Development in Japan (MIDJA) (2008+)
    Probability sample of Japanese adults aged 30 to 79 from the Tokyo metropolitan area. Survey data were collected on sociodemographic characteristics (age, gender, marital status, educational status), psychosocial characteristics (e.g., independence/interdependence, personality traits, sense of control, goal orientations, social support, family obligation, social responsibility), mental health (depression, anxiety, well-being, life satisfaction), and physical health (chronic conditions, health symptoms, functional limitations, health behaviors). These measures parallel those in a national longitudinal sample of midlife Americans known as Midlife Development in the United States (MIDUS) Series. The central objective is to compare the Japanese sample with the United States sample to test the hypothesis that the construct of interdependence predicts well-being and health in Japan, whereas the construct of independence predicts well-being and health in the United States. Cultural influences on age differences in health and well-being are also of interest.

    Sample Size: 1,207

  • Wisconsin Longitudinal Study (WLS) (1957+)
    Provides an opportunity to study the life course, intergenerational transfers and relationships, family functioning, physical and mental health and well-being, and morbidity and mortality from late adolescence through 2011. Data also covers social background, youthful aspirations, schooling, military service, labor market experiences, family characteristics and events, social participation, psychological characteristics and retirement. Survey data were collected from the original respondents or their parents in 1957, 1964, 1975, 1992, 2004, and 2011; from a selected sibling in 1977, 1994, 2005, and 2011; from the spouse of the original respondent in 2004; and from the spouse of the selected sibling in 2006.

    Sample Size: Random sample of 10,317 men and women who graduated from Wisconsin high schools in 1957.

This page last updated: October 21, 2009