PLOS ONE - Transgender Gender Diverse Dataset

Retrospective study of de-identified electronic-medical record data of transgender and gender-diverse (TGD; i.e. those whose gender identity does not align with their sex assigned at birth) adults 18 years and older who receive gender-affirming care within the University of Utah healthcare system. Gender-affirming care includes gender-affirming hormone therapy (i.e. estrogen- or testosterone-based medications) and gender-affirming surgeries. The goal of creating this dataset is to contribute to the growing literature needed about the TGD population in order to facilitate public health efforts to address health disparities as well as answer clinically-impactful questions.

Geographic Coverage:   United States, Utah

Time Period(s):   1/1/2003 – 4/30/2023 (Jan 2023 to April 2023)

Universe:   Adults 18 years and older who identify as transgender or gender diverse, seen at University of Utah Health for gender-affirming care

Data Type(s):   clinical data; medical records

Sampling:   The data collection is a pooled cross-sectional time-series of transgender and gender diverse adults who were seen within University of Utah for gender-affirming care from 2003 - April 2023. We identified patients within our electronic health record using International Classification of Diseases (ICD)-9 and ICD-10 codes specific to gender-affirming care, which are consistently used in prior studies. Patient information, including labs, medications, visits, and previous ICD and CPT codes, were extracted from the University of Utah Enterprise Data Warehouse (EDW).

Data Source:    Electronic health records within University of Utah 

Collection Mode(s):   record abstracts

Unit of Observation:   Individuals

Geographic Unit:   Zip Code